A Push for the Wired Patient’s Bill of Rights
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A Push for the Wired Patient’s Bill of Rights
Starting with a few dozen supporters, including health bloggers, individual physicians, startups and Microsoft, a group is seeking to firmly inject the rights of patients into the Obama administration’s multibillion-dollar drive to computerize medical records.
The group’s effort begins with a Web site, HealthDataRights.org, which goes live on Monday night. And it is a bottom-up endeavor to harness the power of social media to influence policy and practice as personal medical information begins a years-long journey from paper records into the Internet age.
The group’s declaration of “health data rights” states that individuals should have: the right to their own medical information; the right to know the source of each element of information; the right to take a complete copy of their health information; and the right to share their health data with others as they see fit.
Read more at bits.blogs.nytimes.com
